Wednesday, September 9, 2015

Throwback Thursday er Wednesday

Do you know what happens when you pay for a website but don't have it work for many months? You start writing (because it makes your heart happy) and then never add your pictures or publish your thoughts.

Going through my dashboard I have so many posts I started (or mostly finished) and then never had the motivation to finish it all the way.

It's time for me to get some of these up so I apologize as old things start popping up. I'll try to keep the history posts to only a few a week tops. With that said, let's time travel!

Friday, September 4, 2015

Lessons Unexpected

I was reminiscing today about how thankful I am for lessons I never knew I'd need. Not math or history but the life lessons you never want to need. 

When I was in high school my mother had complications that caused her to loose the ability to walk. She was told she'd never walk again (which awesomely ended not true) and ended up in a wheel chair for more than a year.

Both of us standing just two months ago
I remember when we'd go somewhere with wheelchair ramps (that always seemed to have crazy slopes) she'd come flying down them and grab a wheel to turn to a stop just as she reached the bottom. Passersby would usually panic thinking she'd lost control and was in need of help but she explained it that it was less painful on her arms to not try to control the decent when there were no pedestrians in the way. Seemed legit. And, it always provided me with a great deal of amusement, especially the day she did it towards a body of water. 

I thought it was great fun to play in her chair. Especially at places like dinner where'd she'd already be sitting at the table, I'd sit in her chair and if I ended up in someones way it was always more efficient for me to just get up out of the chair and move it. If I'm being honest I did this more for the hilarious reactions and less for the fun of sitting in the chair. 

There is the important skill of being able to get up curbs, over bumps,and whatnot and for that, those in a wheelchair for an extended amount of time learn the wheelie. More advanced is moving directions or spinning while in a wheelie, it's fun. I spent many months practicing it at home because I thought it was so fun (which most things are when you don't HAVE to use it). 

 When you pull it off in public most people seem to think you are about to plummet to injury. Although I was never in the chair in public needing this skill I saw plenty of people react to my mother.

Here I am some 20-something years and a freak accident later finding myself so grateful for my experience in wheelchairs and for public access to them in hotels and airports.  I needed the wheelchair, I didn't need to do the tricks but it sure made the chair a lot more fun.

So, to my previously severely handicapped mother: 
Thank you for teaching me how to use your chair while I pretended to be disabled because one day I would need these skills for real. Things like getting from a wheelchair to a toilet; turning the wheels in opposite directions to make tight corners without bumping your legs; and even how to get in things like bathtubs without the use of your legs (or at least one leg). 
I never knew I'd use these skills or even that it was a life lesson I was being taught but clearly I'm grateful for the knowledge now. 

Thursday, September 3, 2015

Positive Spots

A few months ago my son (just turned two years old) had a spot on his back like a red mole. In just a months time the size increased drastically. Moles don't change. It took some time to get him into a dermatologist but when we finally did see one they decided with his age and the speed of growth it needed to be shaved off and tested.

Now I won't go into all of the details, but lets just say I will never go back to this doctor. My favorite moment was how they pulled the needle out with the numbing medication before instantly cutting his back- never letting the medication take effect. Maybe that's standard practice there, but that's not how I'd want to be treated so my job as mom is to protect my son.

When the results came in the office told me they were abnormal and they'd see me in a few months, nothing else. It took two days for our Primary Care Physician to get the results where he was able to inform me that my son has a Spitz Nevus.

It's bad, but it's not. A spitz nevus is a juvenile melanoma. My son will need surgery where they put him under so every last piece of it can be removed, usually with a laser. Most doctors are not concerned as long as it is under 1cm in size. My son's was 8mm in just 6 weeks. Thankfully the new dermatologist we have has cleared a place in his schedule for us in just 2 weeks even though he's booked through December.

What I know is that he will have surgery. As a family, we will have to be more diligent with his protection from the sun; hats, sunblock, and being as covered as possible. It's hard being such outdoor people, but he loves hats and most of us burn so easy that sunblock isn't a new habit.

Am I scared? Absolutely, but mostly of his surgery. Anytime you are put under anesthesia alarms me. I've avoided it for 31 years yet here my little boy will have it before he even starts school.

Am I grateful? More than I can express.

I was blessed with an opportunity to go to a cystic fibrosis fundraiser just days before getting these results. If you have no idea what it is a quick google search can open your heart. If you want to be really touched, read the story about 65 roses and the optimism they have.
I have it easy as does my son. He'll need to wear hats and use sunscreen. Breathing should never be a struggle for him, at least not from this. I'm so grateful for this realization.

So, hug your babies no matter how old they are and count your blessings.

“The greater part of our happiness or misery depends upon our dispositions, and not upon our circumstances.” 
― Martha Washington